Wiktor is almost 6 months old. Even though he was diagnosed with Down Syndrome, he has been developing properly according to Aunt Asia who is responsible for his rehabilitation. He is very cheerful and older children consider him to be very amiable. His biggest problem is eating; he has a huge appetite, however he suffers from food allergy and all new nutrients must be introduced in the hospital.
He came to us when he was almost 6 months old, but he had already been through a lot. He suffers from FAS (Fetal Alcohol Syndrome) and had huge coronary (heart) problems. He had a very difficult heart surgery and was under care of hospice directed by Gajusz Foundation.
However, Gabryś has a lot of inner strength and will to live, he fights and never gives up. That is why he lives with us. We hope that rehabilitation and our love will help him recover and enjoy life like his peers.
Wiktoria came to us from Polish Mother’s Health Centre. She is 16 months old, she’s petite blond girl with beautiful eyes and long, curly eye lashes. She’s lovely – she started to amaze us since day one. Her biggest issue is congenital heart disease. She has already had numerous treatments and examination and now she is awaiting a serious surgery.
Bartek is a very cheerful boy despite various tough experiences. He has beautiful, dark eyes, lovely smile and hair. He’s very pretty, you want to carry him and hug all the time. He develops a bit slower due to his problems with muscle tone. He is subjected to intensive rehabilitation, psychomotive treatment and relaxation baths which will help him to keep up with other children. He loves looking at himself in the mirror and playing with noisy toys. He discovers the world crawling on the floor and willingly makes new friends.
This Julia is called Julianka since she’s the third Julia in the house. In order not to mix her up with other girls, she got a new nickname. Julianka suffers from Down syndrome, low muscle tone and hearing loss‒that is why she requires a rehabilitation. Her condition, however, doesn’t prevent her from playing, enjoying herself and interacting with others. Every day she becomes more cheerful and sociable. She loves swinging and laughing the entire time. She enjoys long walks in the fresh air, and colourful pictures. She looks really cute in her ponytail.
She got here from Hospice run by Podkarpackie Hospicjum dla Dzieci Foundation. She’s a very happy girl despite various genetic disorders she has to live with. She’s energetic and curious about the world. Jula moves on the wheelchair but even some boys are jealous of her strength and agility. She probably gets her strength from eating a lot of ham and meat. She loves singing and talking to people around her, and she quickly charmed other children.
Here’s tv report about Julcia:
He’s our little urchin. His most serious illness is microcephaly. When you look at him, he doesn’t seem to be different from his peers. He’s very cheerful and lively boy. He’s all over the place! His biggest passions are food and music. The first word he says after waking up is “yoghurt”, and he starts dancing anytime he hears a sound.
Her life so far has been pretty incredible and proves that miracles does happen. Until summer 2008 she lived in hospice for adults. After she was born, she was given small chances to live. However, Julka proved them wrong! She decided to fight for life and not to worry about new diagnosis. Now, she is a fantastic, cheerful girl who keeps developing and discovering the world. She suffers from genetic respiratory failure. She has tracheostomy tube inserted to breathe freely. Since she can’t swallow, she’s fed via PEG (Percutaneous endoscopic gastronomy) and she communicates in sign language. Despite her illness, Julia is a real young lady. She loves dressing up and playing with her hair. She likes having her hair in a plait with colorful hair ties. She loves attention and playing with toys with her favourite Aunt – Monika.
Here you can see a report about Julia
She’s with us almost from the beginning. Edyta is a disabled child. She suffers from cerebral palsy causing Hemiparesis and drug-resistant epilepsy. She curiously observes the surrounding world. Despite her disability she’s very active; she likes playing with dolls, dressing them and carrying in the pushchair. Collecting stickers is her hobby. She enjoys being the centre of attention, especially amongst adults. Edytka is a very beautiful girl with dark eyes who loves clothes, especially pink.
EVEN THOUGH HE IS AN ADULT NOW, HE STILL NEEDS SUPPORT‒HE MOVED TO A PLACE WHERE HE IS OFFERED AND EXCEPTIONAL CARE BUT WE STILL KEEP IN TOUCH WITH HIM. His biggest issue is diabetes. Since he’s not able to control his illness on his own, we all help him. Sylwek has changed a lot, he got more calm. He enjoys playing board games, collecting various things and doing puzzles. His will to share everything he owns with his half-brothers and sisters fascinates us. He cares about everybody.
HE ALREADY LIVES WITH HIS NEW PARENTS. HE FOUND A LOVING HOME AND HE’S HAPPY! That’s how we wrote about him when he was still living with us: Janek is the apple in our eye, within reason, obviously :-), he’s the smallest in the house and the bravest boy in the world. He was born in 29th week of pregnancy and weighed 700 grams. Since he was born he has been hospitalised because of preterm birth and complications connected with it. He had difficulties with swallowing food, that is why he used to be fed intravenously. Now he’s able to eat on his own. Actually, he eats a lot and he is growing pretty fast, making us all really happy. Janek is a very active baby, he smiles discreetly, thanking his aunts for their time and attention, which is very precious to him.
AFTER A YEAR SPENT WITH US, SHE FOUND HER OWN FAMILY. HER PARENTS HAVE FALLEN IN LOVE WITH HER, LIKE WE HAVE. Maja is a very cheerful child, curious of the world and eager to learn more. Each day is a milestone for her development. She was born as a preemie and she used to get pneumonia very often. She required hospitalisation, oxygen therapy and antibiotic therapy. She was very brave and survived this period and she quickly catches up to be like others. You can rarely see her without a smile on her face or dummy‒like most children, she likes sucking it, and barely leaves it alone. She prefers playing with the aunts, walking, listening to music and fairytales.
AT THE AGE OF 19, OLA DECIDED TO BECOME INDEPENDENT. SHE TOOK THE MATTERS INTO HER OWN HANDS, AND WE KEEP OUR FINGERS CROSSED FOR HER TO SUCCEED.
We say that Ola’s soul is ill. Despite being very young, she has been through a lot. She experienced things that even adults may not be able to handle. She found her safe place with us. We all love her and she can always count on us. Ola is a wonderful girl. She takes care of younger children, which makes people like her even more. Her hobby is dance. She loves dancing, creating new choreographies to her favourite songs, watch movies and programs connected with that topic. Moreover, she makes beautiful drawings. Her pictures were hanged all over the House for Sick Children, but also in the office of “Dom w Łodzi” Foundation.
ADAŚ HAS ALREADY PASSED AWAY, BUT THAT’S HOW WE USED TO WRITE ABOUT HIM WHEN HE WAS STILL WITH US:
he was born with cleft lip and cleft palate. His health issues were only the beginning of his moving life history. At the end of June 2010, he fell out of the window of his house and got to the intensive care unit in Polish Mother’s Health Centre with serious injuries. At first, he was said not to live very long. After waking up from the coma, it turned out that this almost three year old boy is not going to give up. Every day Adaś was successfully fighting for life! In August 2010 he came to our house. He quickly accommodated and got acquainted with other children. He steals our hearts with his big blue eyes and honest smile. He’s a fan of motorization. He loves playing with cars, but he enjoys riding a real car even more. He amuses us with his singing and makes us laugh with his facial expressions.
PRZEMEK’S BIRTHDAY WISH WAS TO FIND A DAD… HIS WISH CAME TRUE! SINCE 2013 HE’S HAPPY LIVING WITH HIS PARENTS.
Groszek, Elfik‒that’s how we used to call him when he was little. He was in Children’s Memorial Health Institute in Warsaw. He was living on a thread. Przemek was exceptionally delicate, silent and petite boy. He was‒ because he made a huge progress in our House. He speaks full sentences, recites poems, knows the lyrics to all children songs and loves cuddling! He was diagnosed with Hirschsprung’s disease, congenital megacolon. He is fed intravenously. He is connected to a medical pump 18 to 20 hours a day. He’ll never get a taste of normal food or sweets. Despite his illness, he’s interested to learn more about his surroundings. He’s very observant, and is the best in solving puzzles.
HE IS THE FIRTS TEENAGER WHO BECOME INDEPENDENT AFTER A FEW YEAR’S STAY IN OUR HOUSE FOR SICK CHILDREN.
Kuba is extremely talented. He makes beautiful drawings and decorations. Since he is interested in it, he mastered various techniques, such as: decoupage, ceramics and felting. Unfortunately, his health restrictions make it harder for him to educate in this field. He’s very sociable and easily makes contact with other people.
DAWID FOUND HAPPINESS IN THE NEW FAMILY. WE’RE HAPPY FOR HIM, AND THAT’S HOW HIS STORY STARTS:
He was born in summer as a preemie. He has been lying, connected to a respirator, on ICU in Children’s Hospital for many months. After a year, the respirator was disconnected. He was catching up quickly‒he sat down, played. It turned out that he’s able to see and hear, however his lungs and larynx are very ill. Thanks to the fact that the House for Sick Children run by our Foundation was created, he was able to leave the hospital. He breathes through a tracheostomy tube but he uses a respirator at night. Recently, Dawid started to talk, therefore he has a special tube. He speaks quickly, as if he wants to make up for that lost time. Dawid is a cheerful child, he smiles a lot, and despite his serious illness, daily medical treatments and rehabilitation, he enjoys playing with others.
OLA HAS A NEW FAMILY ABROAD. WE WILL ALWAYS REMEMBER HER, AND THAT’S HOW WE USED TO WRITE ABOUT HER:
She’s been with us since summer 2007. She has serious neurological afflictions. Ola has also troubles seeing. She recently underwent a treatment for ptosis, and she’s wearing glasses now. She couldn’t do much when she came to our House. She was a bit retarded because of negligence. Thanks to intensive rehabilitation and speech therapy, she learned to walk and talk. Ola made a huge progress, which gives us hope that she’ll be able to fully recover. She’s very independent and likes to make her own decisions. She enjoys drawing, painting and watching cartoons.
KACPER IS HAPPY WITH HIS NEW FAMILY. THAT’S HOW WE USED TO WRITE ABOUT HIM WHEN HE WAS WITH US:
Kacper is small and petite because he has dwarfism and is underweight. He was shy and a bit retarded when he came to us. He used to be very silent and closed. He rarely talked to anybody, and seemed not interested with his surroundings or people around him. However, he later realised that his new House is a safe place full of kind people, and he changed completely. Today, he’s a happy, energetic boy, around whom you can never get bored. He’s all over the place. He loves conversations and games. Although he misbehaves sometimes, he is a really nice urchin, and his laugh can be heard most of the time. Kacper likes cars. He enjoys riding in them, as well as observing them from his window. Ever since he got his toy car, he keeps playing with it around the house.
WE HOPE THAT KUBA IS ALSO HAPPY. NOTE ABOUT HIM WHEN HE WAS IN OUR HOUSE:
Kuba suffers from a very serious heart disease‒Hypoplastic Left Heart Syndrome. He requires constant cardiological care and intensive rehabilitation and speech therapy. He has always been under care of doctors from Polish Mother’s Health Centre. During one of his visits in this hospital, he coincidentally met the President of our Foundation who decided to take him to the House for Sick Children if it gets created. That’s exactly what happened. Kuba is six years old now. He is interested in everything that surrounds him and wants to learn new things about the world. He’s very smart, he can easily play his favourite video game or music CD. He loves watching DVDs and muck around the computer and other electronic devices. He has two faithful friends and companions in the House: Kacper and Dawid.